This is Carter Wyatt aka "Smiley" or "Doodle!" He too is Type 1, SMA, diagnosed at 2.5 months old after losing leg movement. He was trached July 5, 2012 due to repeated lung collapses, emergency intubations, and never ending hospitalizations. Mom & Dad finally decided to trach and are so glad we did! We hope this brings him home and helps keep him there. This little boy is mommys heart and daddys best friend! His eyes say so much far beyond his years. No matter the circumstances he's always got a smile on his face! He's such a flirt with nurses; and big brother Landon can always make him laugh! Only 11 months younger than middle brother Cullen, they are so much alike and so different at the same time! Carter has daddys laid back dimeanor. He loves to ride in the car, OBSESSED with MICKEY MOUSE, and does anything for attention! He'll even belly dance the "Hot Dog" song from Mickey for you just to see you smile :-) This baby is without a doubt an Angel from above sent to teach so many so much! He too is why this site and Foundation were created, not only in his honor, but to teach the world his journey and spread knowledge of SMA to aid in a CURE to all who suffer from this awful disease!
One of our oldest warriors!!
Love her! :-)
Lucy is 3 and loves flash cards, reading stories, music, and especially Sesame Street. She is full of sass and is a total Daddy’s girl!
Below is Lucy using her "Slings" to play!
"Kennedy was born a seemingly healthy baby, four weeks early, in December of 2009. She was diagnosed with SMA, Type 1 at 9 months old. Despite the physical limitations posed by her disease, she is blossoming into a very happy and typical two year old. She doesn't always share well with her big brother; she has an opinion on just about everything; she loves to be read to; and she is learning new words everyday. Kennedy keeps us on our toes, and we wouldn't have it any other way."
SMA, Type 1
She's a princess and she knows it!
SMA type 2..diagnosed at 10 months old. Loves his dog, making others laugh, playing hide and seek, swimming, singing, dancing, and being in his "ride chair!"
Madi is a beautiful 4 year old little girl diagnosed with SMA at 9 months. She loves to watch cartoons, go swimming and play with her friends. She loves driving her power chair as fast at she can while she is out shopping. Her favorite places are Target, Lowes and Menards.
"She is 6 years old and has SMA type 1. She also has Down Syndrome, she is trached and on a vent and very HAPPY! She is absolutely amazing. She has lost her smile but we know when she's smiling:) "
Cheyenne was born June 3rd 2011, at 9:07pm and was 8lbs 7ozs. There were no signs of SMA at birth, and didnt show signs until around 4 to 5 weeks old. She was offically diagnosed at 2 months of age, the hospital told us to go home and spend the last couple of weeks to months we had with her, but i knew in my heart it was gonna be years and years. Cheyenne is one happy kid there always seems to be a smile on her face. She loves going for walks, petting animals, playing with other kids, music, candy and hanging out with family. Her favorite toy is stuffed frog that plays music that she got from a relative in germany and she is obsessed with Dora the Explorer. Everyday she teaches me something new, and i feel truely blessed to have her as my child.
Madison Rose Reed was diagnosed with SMA type 1 at 8 months of age. She loves life and her strong will to live has allowed her to live longer than anyone ever expected. She is currently 15 years old!
She loves computer games, virtual worlds, shopping, solving mysteries like Nancy Drew and she LIVES for the boy band Big Time Rush! www.miracleformadison.org
Stella Turnbull just turned 5 years old this spring! She's a blessing to all she meets and makes the world a better place because she's in it. I hope I'm a better person for having known her. :) Born a healthy baby, Stella suddenly lost most muscle tone on her one month birthday. After extensive testing at Mayo Clinic in Rochester, MN, the neurologist came into the room, sadly looked at us and said, “It was worst case, Spinal Muscular Atrophy.” We begged to know what we could do to help our sweet girl and she smiled at us and said, “Love her. Being diagnosed this early, she has weeks, maybe months to live.”
After leaving the room, we sat there clinging to Stella, not wanting to let go. We sobbed and talked about how she wouldn’t ever see her first birthday, wouldn’t get to go to Disney World, and wouldn’t see her high school prom. As tears streamed down our faces as we rocked her, it hit us that Stella saw us crying and looked concerned as if to say, “Are you giving up on me?” From that moment on, I knew in my heart that I would NOT give up on our precious girl until God showed us a different plan for her. Since then, Stella has not only seen her FIRST birthday but her SECOND, THIRD, FOURTH, and FIFTH! She has taken THREE trips to DisneyWorld and we continue to have hope that she will see her high school prom
My name is Amanda Cardoze. I was diagnosed with SMA Type 1 when I was 6 weeks old. I passed away May 13th 2012 at 21 months from a respiratory complication. My mommy and daddy miss me very much but they were awesome parents to me and I did so much in my short life! I got to feel both oceans, I rode a helicopter, I went to the zoo, I swam in many pools, I painted and played with my ipad, I went to music class, I danced, I went to many birthday parties, I snuggled with mommy and daddy, I went to a picnic, I loved to swing with mommy, I was immensely loved, and I just had so much fun here on Earth!
I am now in Heaven having even more fun because here I can run and sing freely! I have many friends up here who were just like me on Earth but are now free of SMA. I also have many friends still on Earth whom I will always always look after.
Please, never forget me!
In loving memory of Princess Amanda. You will never be forgotten!
Our son Jack was diagnosed with SMA at just 6 weeks. It was devastating that a disease we had never even heard of could take our baby away. Jack passed away in my arms at just 6 1/2 months old. We feel blessed to of had such precious moments with him but wish we could watch him grow up. No mother or father should have to watch their child loose the ability to breathe.
This disease needs a CURE!